Thursday, July 4, 2013

Highs -n- Lows Living with the Disease

Thursday, July 4th

Happy 4th everyone...stay safe!

Another beautiful morning! Sunny out again today :-)

This morning I didn't have the lump or knot in my left leg???? So glad but I'm not sure what it was...

Gina, my health care coordinator, called me from the Muscular Dystrophy office yesterday, to let me know she received a letter from the office representing me for Social Security Disability.  I applied for disability many months ago after my Dr suggested I apply. 
I'm really having a hard time.  I've always held two or three jobs at one time.  It's really hard when you're used to working.  I'm not use to sitting around :-(  I keep busy by cleaning, taking care of myself, grandmas from a distance and babysitting Kaylee once and a while.  I have put together flowers pots to take care of, and I'm going through all the closest.  Time to get rid of things.

I applied for a part-time  job earlier this spring but withdrew my application.  I got a letter back from them sharing their disappointment but understood.  It would have been right up my alley. 
Well, yesterday after the kids left I was looking at the paper.  I saw another job right up my alley.  I called and asked about it, put together my resume but I'm struggling with whether to drop it off???? I have my good days but I can really have some very bad days. ???? Will they be willing to put up with these crazy diseases??? Is it fair for me to put them in this situation???  My other coworkers????

While talking to Gina I asked her how many people in MN has DM. She told me there are sixty people in MN and Western WI. with DM.(This is the area the MN DM office covers.) So I am one of sixty people....Wow!  Where do they live?  I would love to talk to anyone with DM by phone, email or in person. (jpmillr@gmail.com)
How long have they had it?  What are their symptoms?  What are the medication they take?  Are the meds helping with the symptoms or causing other symptoms?  Do they work or are they on disability?  Do they have hair lose? Are they in a wheelchair? So many questions :-)

Gina was telling me about a support group in Edina at the MD office.  It is held the second Saturday of the month and they provide food/lunch.  It's from 10:30 to 12:30.  I'm going to start going :-) I'm out of town the second weekend of July but should be around in August.  I would love to meet others struggling with MD.

I continue to strive to stay as healthy as possible.  I eat better, rest and exercise. I really want to get a handle on my weight.  I thought about starting to walk after dark and I will continue to use the glider.  I use it once a day but maybe I should use it a couple times a days???

I know life was never meant to be easy and certainly I have days that are really tough.  I will continue to try to stay positive and at peace with the challenges put before me.We can come together to make things just a little bit easier by being there for each other.  Email me :-)

------------------------------
Today's Bible Study:

Jesus Came to Set Us Free

Read | Luke 4:14-19

On returning to His hometown, Jesus entered the synagogue and—to the amazement of all who were listening—read His job description from the book of Isaiah. Perhaps some people in that congregation were confused by His statement that He was sent to release captives and set the oppressed free (Luke 4:18). Who were those captives? Was He going to storm the prisons?

Jesus was talking about spiritual bonds, not physical ones. Everyone is born with a sinful nature, and we’re all enslaved to sin until that bondage gets broken by faith in the Savior. But even after salvation, Jesus is continually setting us free from things that entrap us, hindering our relationship with Him. He delivers us . . .

• From error: The Word of God protects us from the misconceptions and lies that Satan and his world system use to bombard us.

• From evil deeds: God’s indwelling Spirit empowers us to resist temptation and live a righteous lifestyle.

• From emotional bondage: The Lord doesn’t want us to be controlled by fear, guilt, jealousy, bitterness, unforgiveness, or inadequacy, which steal the peace and joy Christ promised. When we learn to trust Him in every situation, He’ll set us free from these negative emotions.

Many Christians live in bondage with-out realizing it. They know something is wrong but can’t straighten out their lives. Despite all their efforts to “be better,” they keep failing. No prisoner has the key to unlock the door, but Jesus is standing outside the cell, calling, “Trust Me, and I will set you free!”

Another great day!

No comments:

Post a Comment