Saturday, September 12, 2015

Highs and Lows Living with the Disease

Another Beautiful Day!  This weekend we are up north with family...
Enjoying the weather and time together.  It's a beautiful day!   Temperatures are in the high 60's.  Perfect temperature for being outside!  I  haven't been out much but it is a perfect day...
The last several months I've been trying new natural remedies to help me with the diseases and symptoms.  My goal is to get off the pharmaceutical medication and only use natural remedies.  I am sick of all the medication... I know I need them to keep the muscles from deteriorating and the diseases from progressing.
I have been swelling alot and I am having trouble with my left arm...I can feel my muscles deteriorating...it can be painful.
I am having tingling in both legs and my right arm.
I get spells where I can't find the right words or it takes time for my thoughts to get from my brain to my mouth.  It's frustrating...
I will always be thankful for all I can do.  I appreciate each moment of each day.
I will continue to stay positive and enjoy my time with family and friends.  
So very thankful for all I can do!  I am Blessed

Saturday, July 11, 2015

Highs - n - Lows Living with the Disease

Another Beautiful Morning!   So many things to be thankful for...
It's been awhile since I've posted last.  I've been trying to keep focused on the positive side of life...
I've been enjoying the grandkids and I  continue to clean and decorate the house. It can be a full time job. I'm so very thankful that I can do it.
I woke up this morning at 4:30am with a really bad headache...I'm trying to get rid of it but it taking awhile...
The DM and Lupus are causing changes in my life but I will not let them get me down or run my life.  I enjoy everyday the best I can under the circumstances I'm in. 
I'm trying to keep as active as I can.  I do wish I could do more but until then I will be content with where I am.  I continue to study the bible and I want to get back into my old routine of meditation and yoga also but I have trouble staying focused. 
It's the combination of both the medication and the diseases.  I've also been having trouble with my right foot. The bone is inflamed.  I'm not getting around like I used to.  Alot slower these days. :-(
I am so grateful for all that I can do and I will continue to stay grateful for all life has to offer. So Much...
Keep your head up and your eyes on Jesus... :-)
Thank you Lord for being there for me and for providing for my every need.  Continue to show me Your grace. Thank you for providing me strength and Your peace as I travel on my daily journey.  Take away all the pain and light sensitively.  Some days it can be tough...really tough. Guard me from all negativity. Amen and Amen!

Thursday, March 5, 2015

Highs -n- Lows Living with the Disease

Another Beautiful Day!
Yesterday we flew home from AZ.  A big difference in the weather.  The temperature before leaving Arizona was 60's and when we arrived home in Minnesota, the temperature was 24 degrees.  :-( The wind was raw and the temperature is cold. Brrrr...It will take some adjusting...
I will take 60 degrees over 20 degrees anytime.
I had a few rough days while in Arizona, but overall had a great time.  I didn't go out a lot but when I was out, I stayed completely covered. 
Even though I covered my skin it felt like it was burnt but a few hours after being back in...the redness and the burning feeling went away.
I had several rough days, I was running a temperature, my body swelled up and I hurt, really hurt.  I also felt nauseous...not feeling really sick.  It eventually went away after several days of rest...so very thankful for all I can do!
Looking forward to another great day!

Thursday, February 19, 2015

Highs -n- Lows Living with the Disease

Another Beautiful Day!
We are enjoying the warm weather in Arizona...highs have been in the 70's and 80's...
Back home, it's only been in the single didgets...way to cold...

I've been out in the sun/uv a lot within the last few weeks.  I continue to wear my hat, uv make up and long clothing but I still feel sick when I'm out...
I've been swelling and hurting a lot...
My hand, ankle and jaw is cracking all the time... :-(

Even though I haven't been feeling well I am making the most of it...
I am trying to get out as much as I can.  My eyes are blurry due to the swelling...

My teeth are also changing...I'm wondering if the combination of the medicine causes it...they are turning dark... :-( I use to have nice teeth but now they are turning really ugly...
I'm not smiling as much because I don't like to show them...
I use whitening paste or other products to whiten them.  I haven't found the right one yet.

Still so very thankful for all I can do.  I am looking forward to another great day tomorrow...

Tuesday, February 10, 2015

Panic Attacks - Linda Canup

by Linda Canup

Going out to lunch after church is a tradition for our family. So it was no surprise when we found ourselves at a restaurant with a few church visitors we hadn’t seen in a while one particular Sunday. And as is often the case with large parties, it took a while for our food to arrive. When it did, it felt as if I couldn’t eat fast enough. Even after having consumed half my entrée, I looked down at my hands to discover they were shaking.

Maybe I didn’t eat enough for breakfast, I thought. I had eaten a couple granola bars over the course of the morning. Surely, that was enough, right? And I’m eating now. That kind of thing usually corrects itself quickly, doesn’t it?

Then an irrational thought occurred to me: Maybe I was having an allergic reaction to the turkey bacon I had yesterday. I have several food allergies, but turkey’s not one of them. And unlike most allergic reactions, mine usually occur about six to eight hours after consumption. Perhaps there was some unknown cross contamination, and I’m just now feeling the effects?

It’s been over 12 hours, my logical brain countered. That can’t be it.

But by that point, it was too late. My nerves had shot a full dose of adrenaline into my body and my heart began beating so hard and fast, it threatened to explode right out of my chest.

“Whew! I feel faint,” I told my husband. With a gasp, I said, “My heart is just racing.”

Then it clicked. I was having a panic attack.

There are a number of factors that can contribute to panic attacks, including low blood sugar, genetics, and environmental triggers, among others. I’ve had a few attacks before, but under more claustrophobic circumstances, making it obvious what it was, and never just sitting at the lunch table.

Take a deep breath and slowly let it out, I told myself.

“Are you okay?” my husband asked, concerned.

“Yeah, I am. Just give me a minute.”

I focused on breathing calmly and reminding myself nothing was wrong; I was safe. My racing heart slowed and the world came back into focus. I settled down and managed to finish my lunch without the rest of our party being any wiser.

But physically, I felt like I had run a marathon. It took about another 24 hours before I felt the adrenaline work its way out of my system and I was normal again. And spiritually, I felt like a failure. Didn’t Paul write, “God has not given us a spirit of fear” (2 Tim. 1:7 NLT)? I prayed, asking God the question we so often ask, “Why?”

He answered me over time in a way I can only try to paraphrase for you now:

Panic attacks are about feeling out of control. And yes, you are not in control. But you know that I am. And how you respond is much more important than the attack itself, because it’s an opportunity to apply your faith. It’s a chance to call out fear and face it with the truth of Scripture. Like Paul’s “thorn in the flesh” (2 Cor. 12:7), this is a way for Me to be glorified, and a way for you to better empathize with others—that you may “comfort those who are in any affliction with the comfort with which [you are] comforted” (2 Cor. 1:4).

While we may not be able to control anxiety-inspiring events, as Christians, we can respond in ways that express our trust in the sovereign One who is always with us and who lovingly cares for us.

May you always experience His peace and comfort in your time of need.

Dr. Stanley teaches us how to handle stress and fear in his message “When Anxiety Strikes” airing today on radio.

Monday, February 9, 2015

Highs -n- Lows Living with the Disease

It was another beautiful day...
We've been in Arizona for a few day, enjoying the warm weather.  Today's high broke the record...it hit 83 degrees. 

Paul and I have been going to the Tucson Gem and Mineral show...Paul found some different rocks to add to his collection and I found some new scarfs, earrings and a few things for our grandkids.
:-)

I get really wore out and sore after a few hours but I enjoy the time I can spend with Paul. 
I've been swelling and when I swell I hurt and sometimes it's really painful...hard to move around.  Even when I take a shower or anything touching me causes me to jump.  I keep reminding myself that things could be worse and they could be...I am so thankful for all I can do. 

I have several Dr appointment when we return from Arizona....I have an eye doctor appointment, rheumatology appointment, internal medicine appointment and women's health appointment...

The Drs are still trying to figure out why I am bleeding and working on medication changes...

I am so thankful for family and friends and I'm looking forward to another great day, tomorrow...:-)

I have been blessed!

The Real Thing - Joyce Meyer

I'm reading Joyce Meyer's free devotional on my mobile device - check it out... The Real ThingYou are the salt of the earth, but if salt has lost its taste (its strength, its quality), how can its saltiness be rest... http://google.com

Wednesday, January 28, 2015

Highs -n- Lows Living with the Disease

It was a beautiful day...
I was starting to get everything packed for our trip to Oklahoma and then onto Arizona.

It's been a rough month...right after Christmas I got the flu...it lasted a few days but after I had it, Paul got it and I got another flu bug.  We both got colds too. We are still trying to get over our coughs...

While trying to get well, grandma Gloria was going down hill.. It was so hard to watch her go without eating and drinking for so long. It was a week.  One day I was there she pointed to her mouth requesting water so I gave her drops of water.  That same day she mouthed I love you.  I will cherish that.  She passed away after I left last Saturday and on Thursday we had her funeral.  :-) I'm so happy I was well enough to spend some time with her before her passing.  Gloria was my second mom...she will be missed.

On Sunday my grandma passed away.  Tomorrow we are heading down to Iowa for her funeral.  She was a beautiful person and will be missed.

After the funeral we are driving to Oklahoma to attend our grandsons birthday party. 

We are leaving Oklahoma on Tuesday and heading for Arizona to see my brother, Tim and his wife Connie.  We are hoping to arrive in Tucson on Friday.

I've been finding it harder for me to do thing.  I get winded and it feels like I'm carrying a heavy load all the time.  I've had a lot of tingling all over my body. :-(

Tomorrow I go in for a Dr appointment to see if they can figure out why I'm bleeding.  They also found an area that looked unusual so they are talking about taking a biopsy to see what it is.

Even with all these things going on
I am so thankful for all I can do.

Looking forward to another great day tomorrow...

Wednesday, January 14, 2015

Be Yourself - Joel and Victoria

Be Yourself
By Joel and Victoria Osteen

TODAY’S SCRIPTURE
“Since we have gifts that differ according to the grace given to us, each of us is to exercise them accordingly.”
(Romans 12:6, NASB)

The key to living a happy, fulfilling, satisfied life, is really very simple. Just be the person God made you to be, and have the courage to do what God called you to do. He has a unique and individual plan for your life, and the way to becoming a champion for God is to discover that plan and follow it wherever it may lead. But because you are human, it’s easy for you to get distracted — many times, because you’re trying too hard to please other people. Of course, there are legitimate demands on your time that must be met. The good news is that these things don’t have to thwart God’s plans for you. Just make it your desire to follow and please Him, and you won’t be thrown off the path by life’s demands and distractions.

Lord, please help me today to use the abilities and gifts You have given me to honor You. Thank You for not expecting me to try and be someone other than the person You made me to be. In Jesus’ name. Amen
— Joel & Victoria Osteen

A Season of Suffering by Max Lucado


A Season of Suffering
by Max Lucado

God uses our struggles for His glory! The last three years of my dad’s life were scarred by ALS. The disease took him from being a healthy mechanic to being a bed-bound paralytic. He lost his voice and his muscles, but he never lost his faith. Visitors noticed. Not so much in what he said, but more in what he didn’t say. Never outwardly angry or bitter, Jack Lucado suffered with dignity.

His faith led one man to seek a like faith. This man sought me out and told me because of my dad’s example, he became a Jesus follower. Did God orchestrate my father’s illness for that very reason? Knowing the value God places on one soul, I wouldn’t be surprised. And imagining the splendor of heaven, I know my father is not complaining. A season of suffering is a small assignment when compared to the great reward!

Saturday, January 10, 2015

Highs -n- Lows Living with the Disease

Another somewhat beautiful morning...:-) It's been extremely cold, for way too long.  I'm ready to go to AZ.  The temperature in AZ today is 70 degrees.  My kind of weather :-)
I got the flu bug that's been going around.  Wasn't a lot of fun but I'm on my way to recovery.  :-)
Last Tuesday, I had several medical tests, a mammogram, a pelvic ultrasound and Dr consult, and a bone density test.
The results of my bone density test came back.  I have osteoporosis which was brought on by the medication I am taking. :-(
My mammogram result was good.
I also have been given some estrogen cream.  The Dr found an unusual area on my left lining.  If it's not gone by my next appointment, January 29th, they will do a biopsy. My Dr wants to bring in another Dr for a consult.
Many addition questions...it's again wait and see.  Hopefully they can pinpoint the answers to these questions.  I've really had enough!  I just want to live in peace with no more surprises. :-) No More!
I am still very thankful for all I can do...I have been blessed in so many ways even in the midst of all that's going on...
****************************
Today's Bible Study
The Way to Acquire Wisdom
By Charles Stanley
Read | Proverbs 2:1-7
Knowledge is a prized commodity in the world, but more important than knowledge is wisdom (Prov. 8:11). God wants us to view life from His viewpoint and evaluate everything according to biblical principles.
How are believers to acquire this God-given insight? The obvious answer is that we must seek it. Too often, however, people who say they want to be wise do little to actually make that happen. Like any worthwhile treasure, wisdom must be actively pursued and carefully gleaned from its sources.
The first source is the Bible. Proverbs teaches that we should pay attention to God’s life-giving words and hold His commands in our hearts (4:20-22). These days information is broadcast with the slant of the people who packaged it. The only way to know the right perspective—namely, God’s—is to read His ancient “broadcast” and apply its principles (8:33).
Another source of wisdom is the counsel of godly men and women (12:15). The Lord at times brings fellow believers into our life to offer biblical advice, encouragement, or reproof. In Proverbs, those who ignore the words of a righteous person are labeled “fool.” Don’t be foolish. Surround yourself with other followers of Christ who are also seeking wisdom as their treasure.
Our heavenly Father ensures that those who seek wisdom will find it (8:12, 17). Diligent believers will discover they possess abundant treasure: In addition to godly insight, they’ll have knowledge, discernment, and prudence—rare riches in the modern world. Use them well.
Another great day!