Sunday, January 6th
When I was diagnosed with dermatomyositis...I wasn't sure how much I would be able to do anymore...I enjoyed being around people and traveling.
We went to AZ every year and I had a cruise to the Caribbean planned
The Dr told me I couldn't go on the cruise because of the hypersensitivity to UV and inside lighting, and my symptoms weren't under control...it was frustrating...
I'm not going to let myself feel defeated...I will enjoy and accomplish new things in my life...
Saturday, January 5th
My head was itching alot today...my husband, Paul told me I should shave my hair off my head so I could use the medicated cream on my scalp, to keep it from itching...
It's a good idea because my hair is so thin and dry anyway...I just have to learn how to use the wigs I purchased and get the nerve up to have it done...
If it doesn't work out...my hair should grow back...I think :-)
Friday, January 4th
My journey with DM can be a daily challenge...not knowing what each day will bring.
My doctors told me to learn as much as I can about the disease...so I went online to search...I found several sites that could help me gain the knowledge I needed. All of them had good information...
One particular site said many adults with DM at age 60 have cancer :-( this is not what I wanted to read..I try to keep as positive as possible. It's hard enough struggling with the symptoms of DM, Lupus and Shingles...I really don't want anything else added to my plate now or then...
I will keep my head up and enjoy everyday...
Thursday, January 3rd
What a day...Kaylee and I went to visit Grandma's in Faribault...I thought I'd treat everyone to a milk shake from McDonalds...so before going to Milestone I picked up their surprise and we headed over...
After arriving I got Kaylee ready to go in...then I got the treats...I dropped them...I was so upset with myself...I lost only one...the others survived...my hands don't have the strength and they were swollen more than normal today...so frustrating...Kaylee looked at me...I just had to smile...she always brightens my day...
We ended up sharing the milk shakes that survived and enjoying every bit of it...
Another challenging day but a good day!
Wednesday, January 2nd
Today I was moving a few plants from in front of our front door so we could have appliances delivered...I found out that I don't have the strength in my back anymore...I can move a few small pots and then needed to rest...
I am so thankful for what I can do!
Another Great Day!
Tuesday, January 1st
Last night I put oil on my scalp and in my hair...they are both so dry...kept it in overnight...scalp is still pretty itchy...
I am still pretty sore...have been using the patches for the pain but I have them 12 hours on and 12 hours off...
I will get better soon :-)
